A heartfelt thank you to PAH clinicians and patients

September 12, 2017

The following heartfelt letter was written by ZappRx's Northeast Specialty Account Manager, Tom Pallotta, and we felt it was too good not to share with the world. This is a recap of his eye-opening experience at last weekend's PHA On the Road event in Pittsburgh - and his sincere thank you to the team of clinicians and patients who organize the event.

 

Dear physicians, clinicians, and patients,

I would like to share with you an experience I had at the Pittsburgh chapter of PHA On the Road. I am fairly new to the pulmonary hypertension (PH) world, and this was truly an eye-opening experience for me. During the weekend, I experienced a full range of emotions while listening to clinicians, patients, and family supporters speak about pulmonary arterial hypertension (PAH). These emotions ranged from happiness to anger, sadness, inspiration, and even humility.

 

During the event, clinicians gave us a thorough overview of the disease, and offered breakout sessions on educational topics to help patients living with the disease and their family supporters. These topics included how to exercise, how to get around with your oxygen, an overview of insurance coverage, and finally, drug interactions with over-the-counter medications.

 

The highlight of the day was a speech made by a patient and tireless advocate for PAH awareness. About 17 year ago, this patient was given no more then 5 years to live. She spoke about the need to advocate for better laws that impact patients and families, as well as for a better understanding of PAH among the public. Her discussion also shared the importance of help from family members and friends on a daily basis - just to survive. The quote that struck me was, “I have PAH, but PAH doesn’t have me.”

 

I want to thank the clinicians, patients, and family members for all you do in the fight against PAH and other pulmonary hypertension diseases. After a meeting like PHA On the Road, I can say I am proud to work in this field and to stand alongside all of you that work each day to find a cure.